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source: yahoo
group HIV Dissidents
I recommend Tom Bethell's article in the current (June) American Spectator,
part one of a two-part series on Duesberg's cancer theory. Bethell does
a
good job of explaining the work for the general reader. It is not yet on
line. - Phil
The Washington Post, June 4, 2000, Sunday, Pg. B05
HEADLINE: Why Science Can't Cope With Mbeki
BYLINE: Steven Epstein
Political leaders are expected to know a little about a lot of things,
and even when they don't, they often tell us what they think anyway. Yet,
for all their lack of shyness about expressing their views, few are the
times in which politicians hold forth on questions of scientific fact.
World leaders aren't presumed to have detailed opinions about, say, the
quality of the evidence presented in a pathbreaking article in the latest
issue of Nature. When it comes to science, it seems, politicians are in
much the same boat as the rest of us: disqualified from comment by virtue
of a lack of relevant expertise.
That accounts for some of the surprise that greeted South African
President Thabo Mbeki's unanticipated foray into AIDS research. But Mbeki's
comments, expressed in a recent fivepage letter to President Clinton, did
more than raise a few eyebrows. Mbeki wondered whether the knowledge about
the AIDS epidemic generated by Western scientists could even be applied
to
an African setting. And he seemed to align himself with a group of
marginalized scientists he had stumbled upon via the Internet and then
personally contacteddissenters who maintain that HIV is not the cause of
AIDS, and that the drugs prescribed to treat HIV infection actually cause
the symptoms of the disease.
This was not a comment on an obscure technical debate. This was an
intervention into a domain of science where truth matters with a
vengeance, where getting it right has consequences that can be measured
in
billions of dollars and millions of human lives. And certainly Mbeki's
arguments have implications for South Africa, where his government has
resisted spending money on expensive antiviral drugs like AZT that, if
the
dissenters are right, shouldn't be consumed at all.
When Mbeki visited the United States last month, his support of the HIV
dissidents was the dominant media frame. Scientists and physicians
throughout the country bristled with indignation, and some of them called
for a boycott of the 13th International AIDS Conference, scheduled to take
place in South Africa next month.
The ferocity of the response reflected scientists' frustration at the
apparent resurrection of a debate many thought had long since been put
to
rest. In the late '80s, AIDS researchers began responding to the arguments
of Peter Duesberg, a formerly wellrespected professor of biochemistry and
molecular biology at the University of California at Berkeley and a member
of the National Academy of Sciences. Duesberg's argument that HIV has not
been proven to cause AIDS has since been the subject of hundreds of
articles and letters in scientific journals and the media, and he has
gathered a small number of scientists (including one Nobel Prize winner)
and a few advocacy groups behind his banner.
Support for the dissenters has waxed and waned, sliding into the
background whenever the mainstream approach seems to be showing a payoff.
Ever since the new and more effective antiviral drugs first became
available in U.S. pharmacies in 1996, the media and the public have shown
a
diminished interest in Duesberg's arguments, and medical authorities may
reasonably have concluded that they had finally vanquished their nemesisor,
at least, that no one was paying him much mind. Now comes the Mbeki affair
to resurrect the argument.
Scientists and government officials are right to worry about the
potential costs of the South African president's statements. But what is
the best way to respond to Mbeki, or indeed to any nonexpert who endorses
contrarian scientific positions? The problem is that to pose the question
dismissively"Why don't those ignorant people simply accept the conventional
wisdom endorsed by the vast majority of experts?"misses an important point:
Throughout the history of the AIDS epidemic nonexperts have challenged
expert pronouncements about AIDSnot always for the better.
Patients, sometimes scouring the Internet much like Mbeki, have
confronted their own doctors with printouts of cuttingedge research that
the physicians didn't always know about. Activists, with no formal
schooling in virology or statistics but with a hardwon, seatofthepants
grasp of scientific principles, have pressed for changes in the design
of
clinical trials that have led to the enrolling of more patients. People
are
becoming less inclined to embrace an unthinking obedience to the authority
of experts; the very boundaries between nonscientists and experts are
becoming harder to pin down. At least in areas like medical research, where
scientists pronounce on topics as intimate as our own bodies, we should
expectand, I would argue, respectthe active participation of the
uncredentialed. In this regard, simply to dismiss Mbeki's foray into
medical topics is problematic and unhelpful.
It's risky to generalize too much from the case of Mbeki, who is
responding to a very particular set of political and economic constraints.
Among them, of course, are the global inequities that place medical
treatments for illnesses such as AIDSeven after the recent 80 percent
reduction in the cost of antiviralsbeyond the reach of most of the world's
population. Still, because ambivalence about deferring to expert judgment
is now so widespread, it is important to consider the obstacles that stand
in the way of developing more productive relationships between experts
and
the rest of us. Here are three of those obstacles:
When scientific controversies become matters of public debate, claims
about how such controversies should be resolved often get mixed up with
arguments about free speech and its suppression. Mbeki, for example,
compared the HIV dissenters with victims of the apartheid regime, who were
silenced because the established authority believed that their views were
dangerous. Duesberg's supporters in this country have often compared him
with Galileo, who was brought before the Inquisition and silenced in the
17th century for espousing the thenheretical view that the Earth revolved
around the sun. But every scientific controversy has winners and losers,
and not all those on the losing end are victims of persecution, nor will
they inevitably be revealed someday as a Galileo. To be sure, sometimes
the
scientific mainstream does need to be pressured to listen and respond to
an
opposing view. (This may have been the case in the late '80s, when Duesberg
first began publishing his critiques.) But sometimes, when scientists stop
responding to a challenger, it's because there really is nothing more to
be
said.
Second, the claim that a dissident theory is being ignored by the
mainstream is often connected to a presupposition that scientific
controversies ought to be easily resolved. Surely, the argument goes, there
must be a test or experiment that can settle the matter once and for all.
But as sociological studies show, sometimes the very design of the
definitive experiment is part of what is up for grabs in a controversy:
The
two sides cannot agree on what this experiment would look like. Sometimes
the presumably definitive experiment is conducted, but its results are
challenged by those who claim it was not properly carried out. As such
controversies drag on and become public, the media begin ranking the tokens
of credibility of the participants. Reporters sometimes place an undue
emphasis on certain very public markers of scientific status, such as Nobel
Prizes, and provide inadequate clues for readers to assess the legitimate
authority of scientists to speak on specific scientific topics. And the
journalistic norm of balance may impel reporters to present controversies
as having two sides, even in cases when the vast majority of scientists
stand on one of the sides. All these factors prolong a controversy, while
giving credence to the view that the challengers of orthodoxy are not being
given their day in court.
Third, the very existence of ongoing scientific controversy on a topic
that ordinary people care about often fuels distrust of science, to the
extent that people imagine science to be a producer of certainty.
Scientists themselves know better: They recognize that most new knowledge
is provisionalbut they often profess absolute confidence in their findings,
because they believe this is what the public expects of them. The problem
is that when scientific findings appear to be contradictorywhen this week's
study concludes that eggs or wine are bad for you but next week's study
suggests the oppositepeople throw up their hands and declare the scientific
enterprise to be bankrupt. Or, when someone like Duesberg points out the
failure of a reigning theory to account for every piece of evidence, some
people assume that the theory must therefore be tossed out. The more that
scientists persist in overclaiming, and the more that people demand
absolute certainty, the more distrust of science is likely to escalate,
and
relations between scientists and nonscientists will become ever more fraught.
Scientists and nonscientists alike remain mired in bad habits that make
it hard to respond productively to incidents like Mbeki's letter.
Addressing those habits will not solve the vast problems caused by the
AIDS
epidemic, but doing so would make it easier to confront such problems
directly and effectively.
Steven Epstein teaches the sociology of medicine and science at the
University of California, San Diego. He is the author of "Impure Science:
AIDS, Activism, and the Politics of Knowledge" (University of California
Press).
http://www.aidsmyth.com For cutting edge, up to date information
concerning the AIDS myth.
http://www.magnusnews.com Gay and Lesbian news without the fluff.
Some adult content.
http://www.aliveandwell.org Highly suggested reading: What If
Everything You Thought You Knew About AIDS Was Wrong? by Christine
Maggiore.
http://www.healsf.org Health Education AIDS Liaison: A Healthy Alternative.
http://www.aids-statistics.com/ AIDS Statistics.
http://www.actupsf.com, http://www.surviveaids.com For those
questioning HIV and AIDS.
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